A large sample of narcoleptic patients was also used to further describe symptomatology and natural history for this sleep disorder. Check out videos and toolkits from Narcolepsy Nerd Alert. PMID: 11833858 DOI: 10.1093/sleep/25.1.27 Abstract Study objectives: The objectives of this study were to compare severity and clinical presentation for narcolepsy-cataplexy across various ethnic groups. I created this group to try and bring people together that are suffering Narcolepsy and Cataplexy. Live broadcasts happen on the last Wednesday of every month. Narcolepsy is a medical disorder that impacts 1 in approximately 2,000 people in the United States of America. Project Sleep also hosts the Narcolepsy Nerd Alert series, where fellow #NarcolepsyNerds can explore aspects of the narcolepsy experience, contemplate bold questions, and learn from each other. She recommends the following Facebook groups - Foothills Narcolepsy Support Group (Specifically for. Your doctor should be able to recommend a support group for narcolepsy. World Narcolepsy Day (WND), occurring every year on September 22, is dedicated to raising awareness of narcolepsy on a global scale, uniting the international narcolepsy community to inspire action, increase public knowledge, and elevate the voices of the 3 million people living with narcolepsy worldwide. You can follow Desire uniboricua on Instagram. Project Sleep’s Rising Voices program helps foster a new generation of patient-advocates by encouraging people to share their personal stories to improve public understanding of sleep disorders. If you requested to join this group, but do not fit this criteria, please respect the boundary and depart, honoring those who are here. The lack of awareness and understanding of this condition. We are a group to offer support to parents of kids who have a diagnosis and symptoms of narcolepsy. About WUN Newsletter Sign-Up Join WUN Previous Webinars Calendar of Events. Project Sleep is an organization raising awareness about sleep health and sleep conditions, including programming to empower and support people with narcolepsy. I created this group to try and bring people together that are suffering Narcolepsy and Cataplexy. Wake Up Narcolepsy (WUN) is a 501 (c) (3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.
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